Skip to main content

The context you need, when you need it

When news breaks, you need to understand what actually matters — and what to do about it. At Vox, our mission to help you make sense of the world has never been more vital. But we can’t do it on our own.

We rely on readers like you to fund our journalism. Will you support our work and become a Vox Member today?

Join now

Designer babies are just one example of the ethical dilemmas faced by the genomics industry

Illumina CEO Francis deSouza’s company makes machines that let companies like 23andMe understand their customers’ DNA.

Illumina CEO Francis deSouza
Illumina CEO Francis deSouza
Asa Mathat
Shirin Ghaffary
Shirin Ghaffary was a senior Vox correspondent covering the social media industry. Previously, Ghaffary worked at BuzzFeed News, the San Francisco Chronicle, and TechCrunch.

We could live in a future world where people pick and choose the traits their babies have, but it may not be the right thing to do.

It’s just one of the many ethical dilemmas that Francis deSouza, CEO of genomics testing company Illumina, who was interviewed by CNBC’s Christina Farr Wednesday at the Code Conference in Rancho Palos Verdes, Calif. llumina sells DNA sequencing technology to companies such as 23andMe and Ancestry.com.

“There was a wealthy industrialist mogul from Silicon Valley who was curious about designer babies for him and his partner,” said deSouza. “With that much power, there are lots of questions that we will have to address about what it means to be human.”

DeSouza said his company has created an ethical advisory board to address these difficult questions. He also discussed the privacy implications of genomic data, which can reveal something like your predisposition for cancer not just for you but for your entire family.

“Your genomic data is not just your own, you share it with your family tree.” said deSouza, adding that “you can be discriminated against for life insurance” because of genomic data.

There are cases where the privacy trade-off has proven valuable for society as a whole, like in the case the Golden State Killer — a serial rapist and murderer — who was caught decades after the case went cold when his DNA was matched to an open source online genomic database.

Watch the full interview here:

CORRECTION: A prior version of this original article misquoted deSouza as saying, “You can be discriminated against for health insurance because of genomic data.” He said you can be discriminated against for life insurance, not health insurance.

This article originally appeared on Recode.net.

More in Technology

Technology
The case for AI realismThe case for AI realism
Technology

AI isn’t going to be the end of the world — no matter what this documentary sometimes argues.

By Shayna Korol
Politics
OpenAI’s oddly socialist, wildly hypocritical new economic agendaOpenAI’s oddly socialist, wildly hypocritical new economic agenda
Politics

The AI company released a set of highly progressive policy ideas. There’s just one small problem.

By Eric Levitz
Future Perfect
Human bodies aren’t ready to travel to Mars. Space medicine can help.Human bodies aren’t ready to travel to Mars. Space medicine can help.
Future Perfect

Protecting astronauts in space — and maybe even Mars — will help transform health on Earth.

By Shayna Korol
Podcasts
The importance of space toilets, explainedThe importance of space toilets, explained
Podcast
Podcasts

Houston, we have a plumbing problem.

By Peter Balonon-Rosen and Sean Rameswaram
Technology
What happened when they installed ChatGPT on a nuclear supercomputerWhat happened when they installed ChatGPT on a nuclear supercomputer
Technology

How they’re using AI at the lab that created the atom bomb.

By Joshua Keating
Future Perfect
Humanity’s return to the moon is a deeply religious missionHumanity’s return to the moon is a deeply religious mission
Future Perfect

Space barons like Jeff Bezos and Elon Musk don’t seem religious. But their quest to colonize outer space is.

By Sigal Samuel